These suggested consumer health books are available through Brown University's Libraries but can also be searched in Rhode Island's public library system.
Community Health and Wellness
by
Table of Contents
Foreword xv
Preface xvii
About the Authors xix
Acknowledgements xxi
Reviewers xxi
Section 1 Working with Communities
Introduction to the section 2
ch. 1 Creating and maintaining a healthy community 4
Introduction 4
The ecological, multilayered perspective of community health 5
What is health? 5
What do we mean by community? 6
What is community health? 6
Community health and wellness 8
What does happiness have to do with it? 8
Health, happiness and sustainable development 9
Social determinants of health (SDH) 10
Social determinants of health and primary health care 11
Primary health care (PHC) 12
Accessible health care: equity and social justice 13
Social capital 16
Social capital and the political ecosystem 17
Health literacy 17
ch. 2 Communities of place 24
Introduction 24
The global community 25
Urban communities 28
The Healthy Cities movement 30
Rural communities 31
FIFO communities 33
Relational communities 35
Electronic and social media communities 35
Communities of affiliation 36
Migrant and refugee communities 37
ch. 3 Assessing the community 42
Introduction 42
pt. 1 Community Assessment Tools 43
Epidemiological assessment 43
The evolution of assessment tools 46
Asset mapping 50
Assessment tools specific to health education planning 52
Social epidemiology, CBPR, PHC and the SDH 53
Streamlining community assessment 53
Sources of assessment information 54
pt. 2 Assessment in Practice 56
ch. 4 Planning and promoting community health: principles and practices 61
Introduction 61
Terminology and history: public health, population health, primary health care and health promotion 62
Public health 62
Population health 62
Primary health care 62
Problems with the òld public health' 62
Health promotion and the new public health 63
The Ottawa charter for health promotion 63
1. Build healthy public policy 64
2. Create supportive environments 64
3. Strengthen community action 64
4. Develop personal skills 64
5. Reorient health services 64
The millennium development goals 65
Promoting global health 66
Global health, global development 67
Health as security 67
Health as a global public good 68
Health as a human right 68
Health education 69
Sustaining health promotion initiatives 73
Promoting health at the local level 74
Primary, secondary and tertiary prevention 75
Promoting health in communities of place 76
Health promotion in the city 77
Rural health promotion 81
Promoting health in relational communities 82
Promoting health in migrant communities 82
Promoting health in virtual communities 84
ch. 5 Community health nursing roles 92
Introduction 92
The role of nurses in promoting social justice 93
Advanced practice nurses and nurse practitioners 94
Rural and remote area nursing practice 97
Practice nursing 102
Practice nursing in Australia 102
Practice nursing in New Zealand 103
Managing chronic conditions in the community 105
Home visiting 105
Chronic disease models of care 106
Child health nursing practice 109
School health nursing 113
Community mental health nursing practice 117
Occupational health nursing 121
PHC for the working population 123
Research in OHN practice 126
Entrepreneurial nursing roles 127
ch. 6 Working with groups 137
Introduction 137
Successful groups: content and process 137
Group process 141
Problem-solving groups 142
Therapeutic groups 144
Culturally embedded groups 146
Helping people change: from theory to practice 147
Theories of behaviour change 148
Leading, following and being there for the group 152
What is a good leader? 153
Leadership and followership 155
Being there for the group 155
Section 2 Sustainable Health for the Family and the Individual
Introduction to the section 161
ch. 7 Healthy families 163
Introduction 163
pt. 1 The family and society 164
Family functions 164
Defining the family 165
Family developmental pathways 167
Changing families, changing partners, changing roles 168
Population trends, fertility and child bearing 169
Families and work patterns 170
Casualisation, part-time work and parental leave 171
Work and stress 172
Gender and work 173
Transient families: FIFO and military families 174
pt. 2 Couple relationships and family life 176
Social influences on couple relationships 176
Relationship satisfaction 177
Healthy couples, healthy families 178
Communication, power, change and resilience 178
Marriage, separation, divorce and parenting 179
Divorce and parenting 180
Violence in the family 184
Intimate partner violence 185
IPV and the children 186
pt. 3 Families with special needs 187
Migration and family life 187
Migration stress and coping 187
Families caring for members with illness or disability 189
Rural family caregivers 191
pt. 4 Goals, policies and practices for family health 192
Goals for family health 192
Building healthy public policy 193
Creating supportive environments 195
Strengthening community action 197
Developing personal skills 199
Reorienting health services 200
Evidence-based family centred practice 201
ch. 8 Healthy children 208
Introduction 208
The healthy child: from theory to practice 209
Biological embedding 210
Socio-economic factors and childhood stress 212
Global child health, disadvantage and poverty 213
Indicators of child health in Australia and New Zealand 215
The social determinants of children's health and lifestyle 216
Indigenous and ethnic minority child health 218
Children with disabilities or chronic illness 219
Healthy pregnancy 220
Antenatal care 221
Childbirth 222
Breastfeeding 223
Postnatal depression (PND) 226
Children's psychosocial wellbeing 228
Parenting patterns and children's psychosocial health outcomes 230
Learning readiness and social development 231
Resilience 233
Keeping children safe 234
Critical pathways to child health 236
Goals for child health 236
Building healthy public policy 238
Creating supportive environments 239
Strengthening community action 241
Developing personal skills 242
Reorienting health services 243
ch. 9 Healthy adolescents 252
Introduction 252
Social competence, social capital and identity formation 252
Social determinants of adolescent health and risk 254
How young people are faring: good news, bad news 255
Risky behaviours: sex, drugs and alcohol, STIs and pregnancy 257
The compound risk syndrome: alcohol and substance abuse 258
Weight management, activity and nutrition 260
Disordered eating 261
Mental health issues: depression, self-harm and suicide 262
Recognising the risk of suicide 264
Adolescent life in the community context 265
The school context 266
School, home and social networking 267
Bullying and cyber bullying 268
Risk, resilience and decision-making 270
Hope and self-esteem 270
Countering risk: healthy adolescence 271
Goals for adolescent health 271
Building healthy public policy 271
Creating supportive environments 273
Strengthening community action 274
Developing personal skills 275
Reorienting health services 277
ch. 10 Healthy adults 287
Introduction 287
The healthy adult 287
Risks to adult health 288
Cancer 289
Injuries 290
Chronic conditions 290
The top 2 risks: cardiovascular disease (CVD) and type 2 diabetes 291
Lifestyle and the cluster of risks 291
The complex problem of obesity 292
Rural lifestyles: health, place and risks 295
The globalisation of lifestyle risks: East meets West 295
Stress, Mental Health and the SDH 297
Health, wellbeing, stress and the family 297
Mental health, illness and the SDH 298
Stigma, social exclusion and mental illness 298
Workplace stress 300
Workplace incivility and bullying 301
Other workplace health and safety issues 303
Positive mental health and wellbeing 304
Environmental factors affecting adult health 305
Healthy adulthood 307
Goals for adult health 307
Building healthy public policy 308
Creating supportive environments 310
Strengthening community action 311
Developing personal skills 312
Reorienting health services 312
ch. 11 Healthy ageing 321
Introduction 321
Ageing and society 321
Quality of life in older persons 325
Global population ageing 327
Health and place 327
Rural and urban environments for ageing 328
Ageing in Australia and New Zealand 330
Safe environments for ageing 331
Mental health: anxiety, depression, dementia and cognitive decline 332
Elder abuse and neglect 334
Staying well, staying physical, staying connected 335
Critical pathways to ageing 337
Transitions: challenges and opportunities 338
Workplace and retirement transitions 338
Transitions to single ageing or widowhood 339
Transitions in intimacy and sexuality 340
Transitions to the end of life 342
Resilience and empowerment in older people 344
Social and spiritual support 345
Maintaining dignity in coping 346
Goals for healthy ageing 348
Building healthy public policy 348
Creating supportive environments 349
Strengthening community action 350
Developing personal skills 351
Reorienting health services 352
Section 3 Inclusive Communities and Societies
Introduction to the section 361
ch. 12 Inclusive communities: gender, culture and power 363
Introduction 363
Inequality, social exclusion, gender, culture and power 363
Empowerment 366
Boys, girls and intimacy 367
Women's health issues 368
Women and poverty 369
Migrant and refugee women: the intersection of gender, power and culture 370
Intimate partner violence and empowerment 374
Men's health issues 377
Men's lifestyles and health 378
Men's health risks 379
Masculinity, behaviour and the men's health movement 381
Gender issues among sexually diverse populations 382
Gendering society: goals for the health of men and women 385
Building healthy public policies 385
Creating supportive environments 387
Strengthening community action 388
Developing personal skills 389
Reorienting health services 391
ch. 13 Cultural inclusiveness: safe cultures, healthy Indigenous people 398
Introduction 398
Culture and health 399
Culture conflict 401
Cultural safety 401
Multiculturalism 402
Ethnocentrism, racism and differential health care 403
Aboriginality, culture and health 405
Indigenous people's relationships between health and place 406
Colonisation and disconnection between health and place 407
Culture blindness and the Stolen Generations 409
The health of Indigenous people throughout the world 410
The health of Australian Indigenous people 412
The health of New Zealand Maori 413
Behavioural risk factors 415
Injury and family violence 418
Empowerment and self-determination 420
Mental health and healing 421
Strengthening capacity and social capital 423
Goals for Indigenous health 424
Building healthy public policy 425
Creating supportive environments 428
Strengthening community action 429
Developing personal skills 430
Reorienting health services 433
ch. 14 Inclusive policies, equitable health care systems 441
Introduction 441
Politics, policymaking and health care 442
Policy action at the national level: think global, act local 444
Connecting policies with the social determinants of health 445
Policymaking and primary health care 445
Health promotion policies 448
Rural health policies 448
Indigenous health policies 449
Men's and women's health policies 450
The need for policy integration: lessons from mental health 453
Mental health policies and family life 454
Australian mental health policy 455
New Zealand mental health policy 456
Policy and health system features 457
The New Zealand health care system 457
The Australian health care system 463
Health sector reform in Australia 465
Health care: building a better system 466
Best practice in health care systems 466
Health care systems and the social determinants of health 467
ch. 15 Building the evidence base: research to practice 474
Introduction 474
Global community health research 475
Social determinants of health and the research agenda 477
Conducting research for policy and practice 478
Evidence-based practice 479
Systematic reviews, literature reviews, integrative reviews and meta-analyses 480
Randomised controlled trials 483
Sources of evidence 484
Translational research: knowledge translation and knowledge transfer (KT) 487
Community-based research partnerships 489
Community-based participatory research (CBPR) 490
Action research 490
Participatory action research (PAR) 491
Photovoice 492
Case study research 493
Mixed methods 493
Researching culture 495
Researching with Indigenous people 496
Researching the future 498
Appendices 512
Appendix A Symbols Used in a Genogram 513
Appendix B Jakarta Declaration on Leading Health Promotion into the 21st Century 515
Appendix C People's Health Charter 517
Appendix D The Bangkok Charter for Health Promotion in a Globalized World 524
Appendix E Nairobi Call to Action 527
Appendix F Helsinki Statement on Health in All Policies 535
Appendix G National School Nursing Professional Practice Standards 538
Appendix H Australian Family Strengths Nursing Assessment Guide 539
Appendix I ARACY Call to Action: Transforming Australia for Our Children's Future 541
Appendix J HEEADSSS Assessment Tool for Use with Adolescents 544
Appendix K Ecomap 547
Index 548
Health Informatics Data Analysis
by
1 Electrocardiogram
2 EEG visualization and analysis techniques
3 Big health data mining
4 Computational infrastructure for tele-health
5 Identification and Functional Annotation of lncRNAs in human disease
6 Metabolomics characterization of human diseases
7 Metagenomics for Monitoring Environmental Biodiversity: Challenges, Progress, and Opportunities
8 Global nonlinearfitness function for protein structures
9 Clinical Assessment of Disease Risk Factors Using SNP Data and Bayesian Methods
10 Imaging genetics: information fusion and association techniques between biomedical images and genetic factors.
Integrative Women's Health
by
The Medical Library Association Guide to Providing Consumer and Patient Health Information
by
Table of Contents
History of consumer and patient health librarianship / Michele Spatz
Where to start? : needs assessment / Nikki Dettmar
Strategic planning for success / Mary Grace Flaherty
Bricks and mortar : costs, budgeting & funding sources / Cara Marcus
Patient friendly technology : today and tomorrow / Gabe Rios & Emma O'Hagan
Prized assets : staff / Jean Shipman & Erica Lake
Health reference service / Nancy Dickenson, Carmen Huddleston, Gillian Kumagai, Jean Johnson, Edgar Lopez
Ethical issues in providing consumer and patient health information / Barbara Bibel with Michele Spatz
Social media for health consumers and patients / Michelle Kraft
Meeting health information needs of diverse populations : children, teens, LGBT, low literate, ESL / Linda Stahl
Cultural sensitivity and health information resources & services / Donna J. McCloskey
Marketing health library services to patients and consumers / Jackie Davis
Strategic partnerships : in-reach / Carol Ann Atwood.
Quantified Lives and Vital Data
by
Table of Contents
pt. I Introduction
1. Personal Medical Devices: People and Technology in the Context of Health Rebecca Lynch 3
2. Theorising Personal Medical Devices Steve Matthewman 17
pt. II Reconstructing the Personal: Bodies, Selves and PMDs
3. Biosensing Networks: Sense-Making in Consumer Genomics and Ovulation Tracking Adrian Mackenzie 47
4. In/Visible Personal Medical Devices: The Insulin Pump as a Visual and Material Mediator Between Selves and Others Ava Hess 71
5. Redrawing Boundaries Around the Self: The Case of Self-Quantifying Technologies Farzana Dudhwala 97
pt. III Reconstructing the Medical: Data, Ethics, Discourse and PMDs
6. Data as Transformational: Constrained and Liberated Bodies in an ̀Artificial Pancreas' Study Conor Farrington 127
7. PMDs and the Moral Specialness of Medicine: An Analysis of the ̀Keepsake Ultrasound' Andrea Stockl 155
8. Slippery Slopes and Trojan Horses: The Construction of E-Cigarettes as Risky Objects in Public Health Debate Rebecca Lynch 179
pt. IV Reconstructing the Device: Regulation, Commercialisation, and Design
9. Blood Informatics: Negotiating the Regulation and Usership of Personal Devices for Medical Care and Recreational Self-monitoring Alex Faulkner 203
10. Commercialising Bodies: Action, Subjectivity and the New Corporate Health Ethic Christopher Till 229
11. Co-Designing for Care: Craft and Wearable Wellbeing Peta Bush 251
pt. V Conclusion
12. Quantified Lives and Vital Data: Some Concluding Remarks Rebecca Lynch 283
Index 291
Realizing the Promise of Precision Medicine
by
Table of Contents
About the Authors xi
Prologue: Naked Emperors and Supercomputers xiii
1. Population Medicine Versus Personalized Medicine 1
Cure Versus Management 1
The Limitations of Population-Based Medicine 4
Applying the Precision Medicine Model 5
How Does the Precision Medicine Initiative Fit Into the Equation? 6
Putting the Precision Medicine Model to Work Now 10
Understanding the Interlocking Contributors to Disease 14
The Biological Basis for Personalized Medicine 16
The Role of the Microbiome 23
Digital Tools That Enable Precision Medicine 24
References 26
2. Precision Medicine Initiatives and Programs 29
The US Precision Medicine Initiative 30
Managing Data 32
Executing the US Precision Medicine Initiative 33
What Will the Precision Medicine Initiative Reveal? 35
The Age of Biomarkers Is Upon Us 37
Patient Engagement: A Critical Component of Precision Medicine 40
The Value of Precision Medicine Initiative Data Reaches Beyond the US Precision Medicine Initiative Project 42
The Role of Electronic Health Record Data 44
Precision Medicine at Harvard 45
Precision Medicine at Columbia University 47
Johns Hopkins Approach to Individualized Care 47
Mayo Clinic Center for Individualized Medicine 49
Stanford University Emphasizes Patient Engagement 50
References 52
3. The Role of Genomics 55
Genomic Basics 55
Putting Genomics to Use in Precision Medicine 59
Entering the Era of Precision Oncology 61
Is Cancer a Genetic Disease? 65
The Value of Pharmacogenomics 67
The Emerging Science of Nutritional Genomics 68
References 70
4. Small Data, Big Data, and Data Analytics 73
Understanding the Language of Data Analytics 74
Algorithms and Machine Learning 77
Putting Data Analytics to the Test 78
The Role of Big Data in Hypothesis Testing 83
Reconciling Big Data and Randomized Controlled Trials 87
References 91
5. How Mobile Technology and EHRs Can Personalize Healthcare 93
Accessing Patients' "Other" Data 93
The Role of Mobile Technology in Diabetes Control 95
The Role of Mobile Technology in Other Diseases 99
Remote Patient Monitoring 102
Where Do EHRs Fit In? 108
Clinical Decision Support Systems 110
Star Trek-Like Decision-Making Tools 113
References 115
6. i2b2, SHRINE, Clinical Query, and Other Research Tools 119
Taking Informatics for Integrating Biology and the Bedside Into New Territory 121
Shared Health Research Informatics Network Extends the Informatics for Integrating Biology and the Bedside Reach 123
The Impact of Shared Health Research Information Network on Scientific Research 125
Beth Israel Deaconess Medicine and Clinical Query 2 127
Moving Toward a National Network 129
Patient-Centered Outcomes Research Initiatives 131
References 133
7. Barriers and Limitations 135
Does Precision Medicine Cost Too Much? 135
Filling the Genomics Information Gap 140
Addressing the Workload Issue 141
Is There Adequate Scientific Evidence? 146
Additional Barriers to Surmount 147
References 147
8. Interoperability and Personalized Patient Care 149
Defining the Basics and Following a Roadmap 149
What Drives Interoperability? 151
Policy and Technical Components 154
Learning From Our Mistakes 156
Addressing Security Concerns 158
Understanding the Standards That Facilitate Interoperability 160
What Outcomes Can Be Expected? 162
References 162
9. Privacy and Security 163
Keeping Patient Data Safe at the Grassroots Level 163
Insecurity Is Expensive 165
Additional Health Insurance Portability and Accountability Act Violation Expenses 167
Calculating the Cost of Security 167
How Do the HIPAA Regulations Fit In? 169
Taking the Necessary Preventive Measures 172
Passwords, Policies, and Procedures 174
Technological Solutions 175
Applying Security Principles to Precision Medicine Initiative 176
A Case Scenario Requiring Security Protocols 177
References 180
10. Patient and Consumer Engagement 183
Engaging Responsible Patients 184
The Return on Investment 186
Patient Portals Are Not Enough 187
Shared Decision Making 188
Patient-Generated Data and Mobile Engagement 190
Final Thoughts on the Promise of Precision/Personalized Medicine 192
References 193
Index 195
Workplace Health Promotion Program
by
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